I'm dying of a fatal disease. Bureaucrats shouldn’t decide how doctors can try to save me

8 months ago 6

At age 6, I was diagnosed with a fatal disease. At age 11, I lost my ability to walk. Today, I’m 23 and am fighting for my life — and for all of those who are desperate for a cure.

Tragically, the federal government is standing in the way.

I’m not alone; tens of millions of Americans suffer from rare diseases. And while I believe we have entered a "Golden Age" of personali...

Source: https://www.foxnews.com/opinion/im-dying-fatal-disease-bureaucrats-shouldnt-decide-how-doctors-can-try-save-me

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